SPECIAL NEEDSSpecial Children An organization for special-needs children.
PO Box 8193
Bartlett, IL 60103
(630) 213-1630
Center for the Study of Autism This site offers lots of wonderful articles about issues affecting autistic children,
related disorders, sibling relationships, and new interventions/therapies.
PO Box 4538
Salem, OR 97302 www.autism.org
ERIC Clearinghouse on Disabilities and Gifted Education This site is literally a clearinghouse of education articles and information for parents and educators of children with special needs. http://eric.hoagiesgifted.org/
Special Education Resources on the Internet Sponsored by Hood College in Frederick, MD, Special Education Resources on the Internet (SERI) is a compilation of general disabilities information with extensive links to products for the disabled and resources for those with physical and health impairments. http://seriweb.com/
The American Speech-Language-Hearing Association The mission of the American Speech-Language-Hearing Association is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. This site provides resources for parents as well.
10801 Rockville Pike
Rockville, MD 20852
Answer Line (888) 321-ASHA
Action Center (800) 498-2071
voice (301) 897-5700
TTY (301) 897-0157 http://www.asha.org/default.htm
The Arc of the United States
This national organization on mental retardation provides support and services for individuals with mental retardation and their families. This site provides links to local chapters as well as national information on disabilities affecting people with mental retardation.
1010 Wayne Ave, Ste 650
Silver Spring, MD 20910
(301) 565-38423
(800) 433-5255 http://thearc.org/NetCommunity/
The Council for Exceptional Children
The largest international organization working to promote better learning opportunities for children with disabilities and children who are gifted.
1110 N Glebe Rd, Ste 300
Arlington, VA 22201
(888) 232-7733
TTY (866) 915-5000 http://www.cec.sped.org
United Cerebral Palsy Association
Their mission is to advance the independence, productivity and full citizenship of people with cerebral palsy and other disabilities.
1660 L St NW, Ste 700
Washington DC 20036
(800) 872-5827
(202) 776-0406 http://www.ucpa.org
SUPPORT Center for Loss in Multiple Birth Inc. Founded in 1987, CLIMB, Inc. deals with parents who have experienced the death of a multiple or multiples during pregnancy, birth infancy or childhood. It publishes the quarterly "Our Newsletter" and has an active parent contact network. Varous articles and assistance are available to parents of twins clubs, professionals and parent support groups.
PO Box 91377
Anchorage, AK 99509
(907) 222-5321 (one hour earlier than the West Coast) climb@pobox.alaska.net http://www.climb-support.org SHARE: Pregnancy and Infant Loss Support Inc. Provides support toward positive resolution of grief experienced at the time of and/or following the death of a baby. This support encompasses emotional, physical, spiritual and social healing, as well as sustaining the family unit. Provides information, education, and resources for the needs and rights of bereaved parents and siblings. Offers community aid to those involved with the bereaved.
St Joseph Health Center
300 First Capitol Dr
St Charles, MO 63301
(800) 821-6819
(314) 947-6164 http://www.NationalSHAREOffice.com/
Twinless Twins International The late Dr. Raymond Brandt, whose identical twin was accidentally killed at age 20, founded and directed Twinless Twin Support Group. The Twinless Twins Support Group, a resource for families who have experienced a death or terminal illness of a twin or other multiple.
PO Box 980481
Ypsilanti, MI 48198
(888) 205-8962
contact@twinlesstwins.org http://www.twinlesstwins.org/
TRIPLETS OR MOREMothers of Super Twins (MOST) An international network of families of triplets, quadruplets or higher order multiples. This non-profit association provides information, resources and good humor for parents of higher order multiples from pregnancy through school age. Since 1987.
PO Box 306
East Islip, NY 11730
(631) 859-1110 http://mostonline.org/
The Triplet Connection A national organization of parents of triplets or higher order multiples. This site provides articles as well as information about local chapters.
PO Box 429
Spring City, UT 84662
(435) 851-1105
fax (435) 462-7466 http://www.tripletconnection.org
TWIN TO TWIN TRANSFUSION SYNDROMEThe Twin to Twin Transfusion Syndrome Foundation Inc.
Founded in 1992, The TTTS Foundation is an international 501(c)(3) nonprofit organization dedicated to providing educational, emotional, and multiple birth loss support to families, medical professionals, parents of multiples, clubs, and other caregivers before, during or after a diagnosis of TTTS. The organization's mission is saving the babies, improving their future health and care, furthering medical research, and keeping families together the way twins are meant to be. TTTS newsletter and many resources available upon request.
411 Longbeach Pkwy
Bay Village, OH 44140
(440) 899-8887
fax (440) 899-1184 http://www.tttsfoundation.org
Fetal Hope Foundation Provides support, information, education about TTTS and other fetal distress syndromes affecting twins and multiples during pregnancy. Funds research into TTTS and fetal distress syndromes (acardiac twinning sequence—TRAP; amniotic band syndrome—ABS; fetal lower urinary tract obstruction—FLUTO). Operates call center and message board to help families save babies’ lives. Fundraising efforts include national pledge drive and annual TTTS Race for Hope in Denver, Charlotte, Seattle and Los Angeles. Collaborates with leading TTTS laser surgeons and medical centers treating multiples in utero. Lonnie Somers serves as executive director.
9786 S Holland St
Littleton, CO 80127
(877) 789-HOPE or (303) 932-0553 http://www.FetalHope.org
Twin Hope Inc. Offers services to families, educates the public and professionals, and broadens the awareness of Twin to Twin Transfusion Syndrome and other twin related diseases. Provides ongoing support for multiple birth loss and a free, bi-annual publication titled "TwinLines" with mothers stories and a medical update. Twin Hope distributes educational manuals, brochures, and literature to families and medical professionals.
2592 W 14th St
Cleveland, OH 44113
(502) 243-2110 http://www.twinhope.org/twinhope.html
Monoamniotic.org
An online support organization for parents who have been diagnosed with monoamniotic, monochorionic twins. This site contains the most current information available about monoamniotic twins and the various treatments used by the medical community. http://www.monoamniotic.org
twin2twin
The UK Twin to Twin Transfusion Syndrome Association is made up of parents, caregivers and research professionals all dedicated to raising awareness of the syndrome, funding research, and providing care and advice to parents. The aim of the organization is the preservation and protection of the health of unborn babies suffering from TTTS by the provision of information, advice, and support. http://www.twin2twin.org
Fetal Care Center of Cincinnati
3333 Burnet Ave, MLC 2023
Cincinnati, OH 45229-3039
(888) 338-2559 or 513-636-9608 http://www.fetalcarecenter.org/
The Children's Hospital of Philadelphia
34th St & Civic Center Blvd
Philadelphia, PA 19104-4399
(215) 590-1000 http://www.fetalsurgery.chop.edu
The International Institute for the Treatment of Twin-to-Twin Transfusion Syndrome
St. Joseph Regional Medical Center
Julian E. De Lia, MD
5000 W Chambers St
Milwaukee, WI 53210-1688
(404) 447-3535 http://www.wfhealthcare.org/
TWIN CONNECTIONSTwin Connections The Twin Connections web site celebrates the fascinating bond of twins by offering a place to share your twin story, read twin stories, share & view twin photos, learn about famous twins and interesting twin news, and join our community of twins, twin fans and friends. http://www.twinconnections.com
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